Timothy Lucid, 13, of Adirondack, NY, takes a moment to pose for a photo a half-hour or so after he was diagnosed with a chronic disease that subjects him to episodes excruciating, nearly unbearable pain that is so severe it can render him temporarily unconscious. Timothy has helped plan a Cut-A-Thon fundraiser — to raise funds to help others that have the syndrome — that is to occur from 10 a.m. to 4 p.m. at Heidi's Clip Joint, on Lower Main St. in Warrensburg. Photo by Kerry Lucid
A 13-year-old boy from northern Warren County has been stricken with a rare chronic disease that causes episodes of horrible, nearly unbearable pain — and he’s sponsoring a charity hair-cutting event to raise money for research toward a cure.
This “Cut-A-Thon for RSD,” is to be held from noon to 4 p.m. Saturday Dec. 7 at Heidi’s Clip Joint, 3685 Main St. in Warrensburg. All proceeds go to research Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome, both neuropathic autoimmune disorders.
Haircuts are $10 each, and all proceeds go to RSDS.org and RSDHOPE.org, a non-profit organization that assists families in getting the support they need to cope with this life-altering disorder. Donations beyond the $10 are quite welcome.
The event also features a raffle, featuring various goods, services and gift certificates donated by local businesses.
The Cut-A-Thon event was launched by Timothy Lucid, a top-performing 8th grade student at North Warren Central School, and his mother, Kerry. Doctors have praised Timothy for his courage in facing the disease, and local school teachers and administrators have praised him for his continuing commitment to his studies despite his life-altering ailment.
Timothy is olanning to be at the Cut-A-Thon, for those community members that want to meet him.
Timothy was recently diagnosed with RSD after surgery for a fractured elbow. Timothy was an All-Star pitcher with an impressive fastball before being stricken with this devastating condition, for which there is apparently no cure known at this point.
This week, Timothy said he was motivated to launch this fundraiser to help others with the condition, as well as raise awareness about its devastation.
“I’m not alone in this disease — there are 50,000 new cases diagnosed each year, and these other people need as much help as I do.”
He said many of those stricken with RSD are children.
“Kids as well as adults need to get help so they can get on with their lives.”
Reflex Sympathetic Dystrophy causes burning, electric-shock-type pain to the arm or leg, extreme swelling and possible loss of use of a limb or more if not caught in time.
The intermittent pain can be so intense that it often causes blackouts or temporary paralysis. There is no cure, only the possibility of remission.
Kerry Lucid, a beautician at Heidi’s, said that she would be devoting as many hours as it takes on Saturday to make sure every donor seeking a haircut was accommodated.
“I’ll stay at the salon until 10 p.m. if needed,” she said.
For further information, call Heidi’s Clip Joint at 623-2818.