Checking donors in at the Cut-A-Thon for RSD Dec. 7 in Warrensburg are (left to right): John Riley, Dylan Nicholson and Timothy Lucid, who is a North Warren student stricken with Reflex Sympathetic Disorder, an autoimmune condition that causes episodes of extreme, nearly unbearable pain.
A 13-year-old boy from northern Warren County has been stricken with a rare chronic disease that causes episodes of horrible, nearly unbearable pain — and dozens of people from the region jammed Heidi’s Clip Joint Dec. 7 to get their hair cut and support a fundraiser that the boy and his mother organized.
Although the family of Timothy Lucid of Adirondack is facing considerable medical bills due to the condition, Timothy and his mother Kerry Lucid are donating the money to research toward a cure. All proceeds are going to research Reflex Sympathetic Dystrophy and Complex Regional Pain Syndrome, both neuropathic autoimmune disorders.
The response of people reading about his condition in the Adirondack Journal was so great that the salon had standing-room-only for hours on Saturday.
Present at the event was Timothy Lucid, a top-performing 8th-grade student at North Warren Central, greeting people as they came in the salon, thanking for their participation in the fundraiser. He was backed up by schoolmate John Riley, who helps Timothy get around at North Warren, and Dylan Nicholson of Lake George, another friend who played on Timothy’s Little League baseball team several years ago.
“There are a ton of people, and this is a really good turnout,” Timothy said as he checked in people at the door. “It’s so nice to see the community rally around this cause and help out so generously.”
Haircuts were $10 each, but many people donated far beyond that amount. Drawings were held for gift baskets containing various items, services, and gift certificates donated by various area businesses. All proceeds go to RSDS.org and RSDHOPE.org, a non-profit organization that assists families in getting the support they need to cope with this life-altering disorder.
Timothy was recently diagnosed with RSD after surgery for a fractured elbow. Timothy was an All-Star pitcher with an impressive fastball before being stricken with this devastating condition, for which there is apparently no cure known at this point.
Last week, Timothy said he was motivated to launch this fundraiser to help others with the condition, as well as raise awareness about its devastation.
“I’m not alone in this disease — there are 50,000 new cases diagnosed each year, and these other people need as much help as I do.”
He said many of those stricken with RSD are children.
“Kids as well as adults need to get help so they can get on with their lives.”
Reflex Sympathetic Dystrophy causes burning, electric-shock-type pain to the arm or leg, extreme swelling and possible loss of use of a limb or more if not caught in time.
The intermittent pain can be so intense that it often causes blackouts or temporary paralysis. There is no cure, only the possibility of remission.
Kerry Lucid, a beautician at Heidi’s, was busy with haircuts until about 5:30 p.m., 90 minutes past the time the fundraiser was to be concluded. Also cutting hair were salon staff members Jade Leonbruno, Courtney Beadnell, and Sarah Tyrell. Proprietor Heidi Baker was out of town for the weekend.
Kerry Lucid said she was thrilled with the participation from people across the region, and there was a lot of excitement in the salon for nearly 8 hours.
“It was amazing that in the short time we spent planning the fundraiser that we got the support we did,” she said. “Times are hard, and for so many people to support a cause for a syndrome that they probably never heard of is really unbelievable.”
Fred Griffen III and his wife Sara Griffen of Pottersville brought their children Fred IV, 10 and Abigail, 11 to the Cut-A-Thon.
“Tim’s a great kid, very well liked in the community, and we’re happy to help as much as we can,” Sara Griffen said.
Cutting the hair of Kylee Granger of Potterville, Courtney Beadnell snipped a lock of hair as Kylee looked in the mirror.
“It’s satisfying to put my skills to good use,” she said with a smile. “This is all so positive, very exciting.”
Kylee, a North Warren student known for participating in various charities, added her thoughts.
“This is a great opportunity to help someone out in the community,— and Timothy’s really nice and thoughtful,” she said.
Tim Lucid Sr. helped out by conducting the basket raffle. The morning of the fundraiser, several people showed up unannounced at the Lucid home, and as their contribution to the cause, split wood for the family, to provide heat this winter.
“This is great,” Lucid said, noting both the Cut-a-Thon and the wood splitting work. “It’s wonderful how in a small community everyone helps out others.”